Both tests… the Mono & Strep tests
were both Negative. They think she had a really bad virus, and probably while
she was sick her chiari symptoms were just enhanced some because of the virus.
A little disappointed, I guess I was hoping there was this glimmer of hope that
her symptoms were coming from something else. Deep down I knew the tests would
be negative, but that’s OK, we are going to just move forward.
She went
back to school today. Her class had an assignment as a family project, to put
together photos of her favorite memories, “firsts”, or the first 5 years of
life…. We decided to do “Kaylie’s First 5 Years”. While she was under the
weather last week, we worked on picking out photos and decorations for it. They
then had to link/connect all these photos together in some way. We decided to
make a big purple chiari ribbon to put them all on. It came out pretty cute and
she turned it in today.
We have had a lot of people inquire about making donations
to Kaylie. An account was opened for her.
Donations can be sent to:
BancFirst
Att: Stefanie Stromski
600 NW 5th Street
Moore, Ok. 73160
Stefanie Stromski is the wife of a fellow police officer
that Ben works with. She is also the Loan Administration Supervisor at
BancFirst. We were told any donations sent to BancFirst, to be attention to
Stefanie Stromski, noting that it is for Kaylie Barnes Benefit account. “Thank
you” to all the employees at BancFirst.
While I am saying “Thank You”… a very special one has to go
out to all the ladies that work at The Cutest Blog on the Block, for creating
the design aspect of this blog. I thought I was pretty creative, but my
goodness, they have really out done themselves, especially Becky! If you are
looking to start blogging, or even open a small business website… they are the
ladies to check out! You can visit their sites here or here!
One last note, we want all our friends and family NOT to
feel like you can’t talk to us. You can! If you have a question…. Ask! We just
don’t want anyone to feel they can’t talk to us about Kaylie, or Kaylie’s
condition, in fear it will upset us. We want to talk about it. We want the
awareness of Chiara to be out there. Again, we really appreciate everyone’s
support! XOXO
Just wanted to stop by and say I think Kay's family project turned out great!! We haven't even started ours yet. Good job Kay!!! :)
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